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About Me
- Steve Evans
- OK, should have done this two years ago when I was first diagnosed with Motor Neurone Disease but better late than never. I thought it would be a good way of keeping anyone who was interested up to date with what's going on with us. Communication is getting harder and whilst I want to keep texting, emailing and chatting to everybody this seemed a good way of saying more things to more people more easily. Typing is a slow process (this has taken 20 minutes so far) so a once to many approach seemed good. I hope to keep it up to date with various stuff including whinges about things MND related as despite trying to "keep positive" it does affect (in a generally f**ks it up kinda way)almost everything I do! For those of you who really want to, you can check out my "status" on my web link. Finally, PLEASE leave comments, even if brief as its the only way I know its being read!!
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2 comments:
Rash promises my friend
Will he notice if you get a fake........
On more serious matters, so sorry to read the news about your friends over Easter; all these complicating factors are making an already difficult & unpleasant decision regrarding ventilation that much tougher for you. I just hope that whether you do end up having to go into the hospital or manage to find someone to help at home, it tunrs out less awful than you are expecting......
Love to Tracy & the boys,
Phil
Jakey Hendrix!! Wow, he's really good!
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