Saturday, 2 February 2013

2013 so far

just a quick update as I have received a few messages wondering if everything is ok. In short, it is, but I just haven't been feeling particularly communicative recently. Also I am finding it difficult writing longer pieces. My eyegaze accuracy seems to be worse now and I spend more time deleting erroniously selected letters or words. It drives me f***ing mad and I eventually give up. So after spending an hour writing necessary emails, usually including ones to my incompetent care agency, I can't face embarking on blogging.

My neck is continuing to weaken so I am spending more time with my head resting on my chest.

So to bring you up to speed, Christmas went well, with our respective families visiting on christmas and boxing day. Haven't been out until recently but last week managed three trips out; Thursday afternoon, Les Mis at Esher cinema; Rocky Horror at Wimbledon theatre on Friday night and watching the boys bowling on Sunday.

We are currently preparing accommodation for a live-in carer. The live-in option has advantages and disadvantages but the PCT wouldn't fund anymore hours and the live-in route is cheaper for them.

Despite a live-in carer probably starting in a couple of months my care agency have decided to give me a new, completely inexperienced regular carer for the intervening weeks, expecting me to endure the stressful training period, only to start all over again with the live-in carer! Needless to say they have received some fairly strongly worded emails.