Finally I was determined to make a 60 second version, with the view to getting it on TV as an ad campaign to raise awareness and funds. BUT the minimum cost of airtime for a realistic ad campaign is £25k. So if anyone knows of any organisations who could contribute a few grand, let me know.
This ALS Ice Bucket Challenge phenomenon has been unbelievable. When I watched celebrities participating in this challenge, I broke down into a sobbing mess. Because for the first time since receiving my death sentence diagnosis, I didn't feel forgotten and ignored by the world outside of my friends and family. This has been the single most important awareness and fundraising event for ALS and by god we need it.
The documentary on BBC Fresh goes live next Wednesday 27th August, the 20 minute documentary will be put online shortly after and my initial information film will be on the MNDA website soon. But here is the 60 second potential ad.