I am stuck at hospice until Monday now, almost 2 weeks, not happy. I will explain tomorrow but almost 2 weeks here is mind numbingly boring, even by my tedious existence standards.
OK, should have done this two years ago when I was first diagnosed with Motor Neurone Disease but better late than never. I thought it would be a good way of keeping anyone who was interested up to date with what's going on with us. Communication is getting harder and whilst I want to keep texting, emailing and chatting to everybody this seemed a good way of saying more things to more people more easily. Typing is a slow process (this has taken 20 minutes so far) so a once to many approach seemed good.
I hope to keep it up to date with various stuff including whinges about things MND related as despite trying to "keep positive" it does affect (in a generally f**ks it up kinda way)almost everything I do!
For those of you who really want to, you can check out my "status" on my web link.
Finally, PLEASE leave comments, even if brief as its the only way I know its being read!!
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