One more now.... I had been trying for two days but kept stopping on me! That's north London broadband for you.... Great video mate- so sorry to hear your frustrations at the latest upheaval this weekend- it was not so long ago you had to go through all this before and I understand you are thoroughly sick of it. Hopefully, as before, new carers will turn out to be great once you ave gone through the initial pain and trauma tho. Hope to see you soon
...and another one. It's a really great video Steve and I think you get the message across in just the right way. I expect the boys will enjoy their moment of fame! Caroline
Just seen your video Steve. I think it's incredible. One positive comment to say about your optimistic video is that it makes it totally clear that there is a fully aware, intelligent person behind the mask of a body that won't move. Anna P
OK, should have done this two years ago when I was first diagnosed with Motor Neurone Disease but better late than never. I thought it would be a good way of keeping anyone who was interested up to date with what's going on with us. Communication is getting harder and whilst I want to keep texting, emailing and chatting to everybody this seemed a good way of saying more things to more people more easily. Typing is a slow process (this has taken 20 minutes so far) so a once to many approach seemed good.
I hope to keep it up to date with various stuff including whinges about things MND related as despite trying to "keep positive" it does affect (in a generally f**ks it up kinda way)almost everything I do!
For those of you who really want to, you can check out my "status" on my web link.
Finally, PLEASE leave comments, even if brief as its the only way I know its being read!!
5 comments:
One more now.... I had been trying for two days but kept stopping on me! That's north London broadband for you....
Great video mate- so sorry to hear your frustrations at the latest upheaval this weekend- it was not so long ago you had to go through all this before and I understand you are thoroughly sick of it. Hopefully, as before, new carers will turn out to be great once you ave gone through the initial pain and trauma tho.
Hope to see you soon
Great video Steve, good to see you and the cheesy grins!
Sorry to hear about the carer change- that sounds stressful.
Em xx
...and another one. It's a really great video Steve and I think you get the message across in just the right way. I expect the boys will enjoy their moment of fame! Caroline
Just seen your video Steve. I think it's incredible. One positive comment to say about your optimistic video is that it makes it totally clear that there is a fully aware, intelligent person behind the mask of a body that won't move. Anna P
Amazing video and still a great smile ;-)
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