I have just heard from Kings College Hospital about the Trophos trial they have been running and that I have participated for 2 years. The results have been released and it appears that the drug had no effect on disease progression.
http://www.mndassociation.org/news_and_events/our_news/olesoxime.html
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I am sure you were probably disappointed in many ways. Sorry!
Balls! The mixed feelings must be unbearable. Your Blog makes for depressing reading these last few months. I really felt for you when we saw you for your birthday and there were smells wafting from the kitchen. There are no 2 ways about it, this disease is shit. You, however, are still amazing.You are still an inspiration to the rest of us. You are as articulate as I dream of being.Your sense of humour is still as dry as a dry bone. I think of you every time I put cutlery in the dishwasher cos you couldnt understand why people put it in with the handles down and get their hands mucky. I think of you whenever i brush my teeth cos you used to talk non stop about electric toothbrushes and how fab they are when they first came out. And I think of you whenever i press the "insert" button on my keyboard cos you helped me save hours of work on my casebook many years ago when you taught me that over the phone. I'm not the only one who wills you to give this disease the two fingers on a daily basis. Hang in there. Bearable times will return.
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