Steve Evans Blog

Monday, 24 August 2015

The July I want to Forget

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It's no exaggeration to say July was the 4 worst weeks of my life and I feel things have now changed forever. It started at the end of J...
7 comments:
Tuesday, 2 June 2015

Regaining a little independence

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I am currently helping one of my MND friends, Patrick, to make an eyegaze controlled wheelchair driving system, or as Patrick has branded it...
6 comments:
Monday, 6 April 2015

We Are Not Alone

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Filming My Father In Life And Death  click to watch on demand until March 2016  If you want to know how MND has affected me and my fami...
3 comments:
Sunday, 29 March 2015

Quick update

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Just noticed it has been 3 months since my last post and I haven't posted anything this year yet. The reason is a combination of still b...
2 comments:
Wednesday, 10 December 2014

Bracklesham Bay Retreat

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In last months interview blog I mentioned buying a flat, so let me explain. A few months ago I started thinking about the idea of buying an ...
5 comments:
Sunday, 16 November 2014

A Recent Interview

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" Perseverance, patience and acceptance” – PatientsLikeMe member Steve shares what it’s like to live with MND Posted November 14th, ...
3 comments:
Thursday, 11 September 2014

Summer Update

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Ok, time for an update as I can't do much else this week (more on that next month). Again I have neglected the blog so a quick update ...
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Steve Evans
OK, should have done this two years ago when I was first diagnosed with Motor Neurone Disease but better late than never. I thought it would be a good way of keeping anyone who was interested up to date with what's going on with us. Communication is getting harder and whilst I want to keep texting, emailing and chatting to everybody this seemed a good way of saying more things to more people more easily. Typing is a slow process (this has taken 20 minutes so far) so a once to many approach seemed good. I hope to keep it up to date with various stuff including whinges about things MND related as despite trying to "keep positive" it does affect (in a generally f**ks it up kinda way)almost everything I do! For those of you who really want to, you can check out my "status" on my web link. Finally, PLEASE leave comments, even if brief as its the only way I know its being read!!
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